Expanded List Of Orphan Diseases

Expanded list of orphan diseases

The list of orphan diseases, the treatment of which should be financed from the federal budget, has been supplemented by two more pathologies. The corresponding draft decree of the Cabinet of Ministers was prepared by the Ministry of Health of Russia and posted on the portal of draft regulatory legal acts.

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The list of orphan diseases, the treatment of which should be financed from the federal budget, has been supplemented by two more pathologies. The corresponding draft decree of the Cabinet of Ministers was prepared by the Ministry of Health of Russia and posted on the portal of draft regulatory legal acts. This was reported by the "Parlamentskaya Gazeta".

The list of orphan diseases included unspecified aplastic anemia and hereditary deficiency of factors II (fibrinogen), VII (labile), X (Stuart-Prower).

In addition, amendments were made to the decree of the Cabinet of Ministers on the procedure for organizing the provision of medicines to persons suffering from a number of rare diseases (hemophilia, cystic fibrosis and others), dated November 26, 2018.

The document was prepared in connection with the adoption of the relevant law. On December 27, Russian President Vladimir Putin signed a law that transferred funding for the procurement of drugs for the treatment of these orphan diseases from the regional level to the federal one.